seen in the Miami Herald, January 8, 2008
Chair Project Kenneth
J. Friedman is
appointed to the Board ofIACFSand
Chair of its membership Committee. He says: "I look forward to the challenges and the opportunity to
bring our efforts worldwide".
a result of our legislation (below), The Vermont Department of Health
has built a new web page about Chronic Fatigue Syndrome. This
is the beginning. They will promote it in a series of venues and
soon, they will include a link where health care providers (and
others) can contact the Health Department for a hard copy of the
Consensus Manual for Primary Care Physicians. Access
their web page here:
INTERNATIONAL CFIDS AWARENESS DAY
Contois Auditorium, City Hall, Burlington, Vermont, U.S.A.
We recognized the success of Vermont’s Legislation, H.244,
a bill designed to educate primary care physicians and other health
providers in Vermont, about Chronic Fatigue Syndrome. Audio
File of this Event
the left: Kenneth Friedman, PhD, co-author of “The Consensus
Manual for Primary Care Physicians”, & a member of the
Chronic Fatigue Syndrome Action Committee, Burlington Mayor, Bob
Kiss, Rik Carlson, the VT CFIDS Association, Kevin Veller, representing
Senator James Jeffords,
and Philip Fiermonte, representing Congressman Bernie Sanders. Lynne
Vitzthum, representing Senator Patrick Leahy was also in attendance.
is of critical importance to hundreds of Vermonters and their families
that primary care physicians be instructed on the range of therapies
across medical disciplines that can improve the lives of CFIDS patients.
This bill will allow us, in conjunction with the Vermont Department
of Health to print and distribute the Consensus Manual to health
care providers across Vermont.
Radio Interview with Ken Friedman PhD.
Radio Vermont, WDEV AM 550, FM 96.1
Wednesday, February 23, 2005.
Listen as Ken explores the details
Chronic Fatigue Syndrome Education Legislation. Audio
File of this Event
Ken Friedman, PhD., addresses the press
in Burlington Vermont on May 12, 2005.
To his right is Burlington Mayor Peter Clavelle and Tonia Socinski-Barbin.
Details are below. Click on the picture to see it enlarged.
12, 2005 was International CFIDS Awareness Day.
It was recognized in Burlington and
in Washington D.C. and in other cities across America. There was
a press conference co-sponsored by Mayor Peter Clavelle.
attendance was Ken Friedman, a representative of the CFSAC, Chronic
Fatigue Syndrome Action Committee of Washington D.C. This
committee has been charged by the CDC to recommend appropriate actions
in treatment and management of CFS. We also heard from Rik Carlson,
Tonia Socinski-Barbin, and Mayor Peter Clavelle. There where Proclamation’s
from the Mayor, the Governor, and the Legislature, and an official
update of the status of our bill, H.244. The event was filmed by
Interview with Rik Carlson on The Mark Johnson Show
Previewing the May 12th Press Conference, 05/11/05,
February 10, 2006
From U.S. Senator Patrick Leahy:
Thank you for contacting me about Chronic Fatigue Syndrome (CFS).
I appreciate hearing of your concerns on this issue.
CFS is a devastating disease that impacts thousands of Americans
and their families. Our knowledge about CFS is limited and treatment
options are often ineffective. I recognize that it is a serious
public health concern and deserves greater attention and commitment.
The Chronic Fatigue Syndrome Advisory Committee (CFSAC) was chartered
in 2002 to advise the Department of Health and Human Services (HHS)
on the policies and programs that impact individuals with CFS. In
August of 2004, the CFSAC submitted their list of recommendations
to the HHS. The recommendations highlighted the need to expand research
funding and scope, particularly in the areas of diagnosing and treating
CFS in children and adolescents. It is important that the HHS give
their immediate attention to reviewing these recommendations and
developing strategies to foster expanded research and more effective
treatment. I appreciate you sharing your experience with me,! and
you can be sure that I will carefully monitor this issue.
Thank you again for writing. Please keep in touch.
is the key to recovery.
You alone are responsible for the restoration of your health.
The Wisconsin CFS Association recently hosted an International Medical
Conference on Chronic Fatigue Syndrome, Fibromyalgia, and other
related illnesses.You can get all the books and materials from the
conference at their site, linked below.They have all the speakers
on video, CD, and DVD. This is an extraordinary
organization and they can help you.
Go make some friends. Wisconsin
& Cathie Dinsmore
U.S. National Snow Sculpting Click
as a Disability" by
Arthur P. Anderson, Esq. as prepared for
Vermont's Consensus Manual Download
as a .pdf file
& Buran PC
Burlington, VT 05402
Suffering from and living with
physical and emotional pain? come join this
Women’s Support Group
starting in March
12:00 - 1:30
323 Pearl Street #103
Kira Krier LICSW
Pennies A collaborative
education and research project sponsored by PANDORA (Coral Gables,
FL) and (Madison, WI)
Click on the coffee can
to print your own label.
Support our friends!
the healing power
of friends. (photo
by Carl Cornell)
Disability Advoocates Specializing
in Social Security Claims Nationwide Michael Milne
774 3577 firstname.lastname@example.org
Special Thanks: Heidi Brousseau Accounting