A 501(c)3 Private Foundation

P.O.Box 3162
Burlington, VT 05408

[ last updated 11_24_08 ]

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Living with
Multiple Chemical Sensitivity

by Cecile Starr Boyajian

An Interview With
Dr. Ken Friedman Part Three
by Cort Johnson

Symposium on Viruses In CFS:
Part One
Part Two

Is it Thyroid?
submitted by Janet Thompson

Amygdala Retraining Blog
as experienced by
Cort Johnson

Victory in Spain!

An Interview with
Dr. Ken Friedman, Part Two
by Cort Johnson
Phoenix CFS

An Interview with Dr. Ken Friedman by Cort Johnson
Phoenix CFS

Take Action, Click Here:
Funding is determined by the number of hits to this web site.
Click early, click often.

Vermont Department of Health

An Interview With Cort Johnson

Lydonville News
February, 2008
David S. Bell MD, FAAP, Editor

Vermont's newest U.S.Congressman,
Peter Welch (left)
is prepared to be of service.

Campaign For a Fair Name
Please sign the petition! Involve yourself with the message board. Click Above.

Phoenix Interview

Name Change News!

Recommendations for Persons Anticipating Surgery

Guidance for Fibromyalgia Patients Who are Having Elective Surgery

Follow-up on the Stanford Study
ie: Valcyte (TM)


Two Minute Mystery Movie
discovered by Tiffany Martin

Letter to Dr. Anand Parekh
by Cecelia Blair
May 14, 2007

Winged Monkey Video

Chronic Neurotoxins
Submitted by Faith L'Heureux

New Therapy for
Chronic Fatigue Syndrome
to Be Tested at Stanford

submitted by Janet Thompson

The Spoon Theory
courtesy of Tiffany Martin
& Mary Lane

A Letter From Cecelia Blair
January 20, 2007

Thoughts on CFIDS
in Vermont
January 2007

Hubert H. Humphrey Building
Dept. of Health & Human Services
Washington D.C.
A report on the status of
CFIDS in Vermont,
presented to
The Chronic Fatigue
Syndrome Advisory Committee
April 24, 2006,

by Rik Carlson

Pat Fero's Testimony

March 2006
A Doctor with CFIDS

The Book

Two letters written to Vermont State Senators that explain the critical importance
of this bill.

Click Here

Research Breakthrough

Mitochondrial Malfunction.pdf
This link is courtesy of
Tiffany Martin.

The CDC's Physician's Toolkit
A 30 minute tutorial.

Good Girls Don't Get Sick
An Amazon Short
12 pages $0.49

May 12, 1997...a daunting task

Confessions of a
State Trooper

Doctors Page

Rik's Definition

Victoria Definition

Fibromyalgia Relief
by Tonia Socinski

A letter to VHAP
concerning massage therapy
with Fibromyalgia
by Lainey Rappaport

"The Frog Lady"

Three Poems
by Cecelia Blair






Poetry, Photography and Beadwork by Elise Marks

Consensus Manual
in Negotiation to be
Printed in Japan!

Myalgic Encephalomyelitis

We've Moved!
New Site, Click on this link:

An Afternoon with Carol Joy Gardner,
Osteopathic Medical Physician
Saturday, February 21, 2009
2:00 - 4:00
95 Roosevelt Hiway #210
Colchester VT



Chronic Fatigue Syndrome Support Group
March 19th, 2009 1:00 - 3:00 at the
Burlington Police Station Community Room
One North Avenue, Burlington, VT

Fall, 2008 New Jersey Conference

How one woman copes with Fibromyalgia
submitted by Kenneth J. Friedman Ph.D.

Recognizing and Assisting Students with CFS
by Dr. Kenneth Friedman and Rosemary Underhill

Medical Scholarship Fund Started!
Press Release

Ethan Ready from Senator Bernie Sanders office addresses
the May 12, 2008 Press Conference in Burlington.
Photo by Lainey Rappaport

Local CBS Coverage of the May 12, 2008 Event

Channel 17 complete coverage of
May 12, 2008 in Burlington

This includes the scholarship announcement, a sneak preview of our film and a dramatic altercation with a conspiracy theorist that ended the meeting.
1 Hour 6 minutes.

Rik Carlson on The Mark Johnson Show, May 7, 2008. 17 minutes, audio.

Encounters with the Invisible:
Unseen Illness, Controversy,
and Chronic Fatigue Syndrome

By Dorothy Wall
Afterword by Nancy Klimas, M.D.

The Positive Side of Lyme
by Kenneth Friedman, PhD

Pfizer & Lyrica
A New York Times reporter asks his readers,
This old myth surfaces once again and we need your voice more than ever!

Letters in response to the New York Times!

Medical Conference - Similarities and Paradoxes in Chronic Illnesses
The Renaissance Vinoy Resort
St. Petersburg, FL
January 19, 2008

As seen in the Miami Herald, January 8, 2008

Empty Chair Project

Kenneth J. Friedman is appointed to the Board of IACFS and
Chair of its membership Committee. He says:
"I look forward to the challenges and the opportunity to
bring our efforts worldwide"

Our Future in Nevada!
by Pat & Bruce Fero

October 07 Conference in New Jersey

New Pediatric Case Definition!

Article by Ken Friedman and Dorothy Wall as appeared in the
South Florida Sun Sentinel

And,...from the New York Times!


22 Vermonters "attend" Washington Conference.

Proposed Outreach Program and Why
by Marly C. Silverman

May 12, 2007
Fish or War by Kenneth J. Friedman, Ph.D.
Background information for the CFSAC research recommendations.

Speak-Out! The Life You Save May Be Your Own!
Kenneth J. Friedman, Ph.D.
May 14, 2007

Rik Carlson (right) on The Mark Johnson Show, May 10, 2007
Click here to listen to the show.
Audio File: 28 minutes

Searching for a doctor in Vermont. What we're up against.

October 23 2006:

      As a result of our legislation (below), The Vermont Department of Health has built a new web page about Chronic Fatigue Syndrome.  This is the beginning. They will promote it in a series of venues and soon, they will include a link where health care providers (and others) can contact the Health Department for a hard copy of the Consensus Manual for Primary Care Physicians.     Access their web page here:

Vermont Department of Health: Chronic Fatigue Syndrome

May 12, 2006
Contois Auditorium, City Hall, Burlington, Vermont, U.S.A.

We recognized the success of Vermont’s Legislation, H.244,
a bill designed to educate primary care physicians and other health care
providers in Vermont, about Chronic Fatigue Syndrome.

Audio File of this Event

From the left: Kenneth Friedman, PhD, co-author of “The Consensus Manual for Primary Care Physicians”, & a member of the Chronic Fatigue Syndrome Action Committee, Burlington Mayor, Bob Kiss, Rik Carlson, the VT CFIDS Association, Kevin Veller, representing Senator James Jeffords,
and Philip Fiermonte, representing Congressman Bernie Sanders. Lynne Vitzthum, representing Senator Patrick Leahy was also in attendance.

It is of critical importance to hundreds of Vermonters and their families that primary care physicians be instructed on the range of therapies across medical disciplines that can improve the lives of CFIDS patients. This bill will allow us, in conjunction with the Vermont Department of Health to print and distribute the Consensus Manual to health care providers across Vermont.

Statement of Support from Senator James Jeffords

Radio Show:

Audio File of this Event
Rik Carlson & Kenneth Friedman PhD., were guests on
The Mark Johnson Show , WDEV AM 550 & FM 96.1,
Thursday May 11, 2006

Senate Appropriations Bill H.881
"An Act Relating to Chronic Fatigue Syndrome"

Vermont CFIDS Education Legislation - Definition

H.244 See the Bill

Legislative Questions and Answers.

Download the Consensus Manual

Live Radio Interview with Ken Friedman PhD.
The Mark Johnson Show,
Radio Vermont,
WDEV AM 550, FM 96.1
Wednesday, February 23, 2005.

Listen as Ken explores the details of the
Chronic Fatigue Syndrome Education Legislation.
Audio File of this Event

Ken Friedman, PhD., addresses the press conference
in Burlington Vermont on May 12, 2005.
To his right is Burlington Mayor Peter Clavelle and Tonia Socinski-Barbin.
Details are below. Click on the picture to see it enlarged.

May 12, 2005 was International CFIDS Awareness Day.

It was recognized in Burlington and in Washington D.C. and in other cities across America. There was a press conference co-sponsored by Mayor Peter Clavelle.  

In attendance was Ken Friedman, a representative of the CFSAC, Chronic Fatigue Syndrome Action Committee of Washington D.C.  This committee has been charged by the CDC to recommend appropriate actions in treatment and management of CFS. We also heard from Rik Carlson, Tonia Socinski-Barbin, and Mayor Peter Clavelle. There where Proclamation’s from the Mayor, the Governor, and the Legislature, and an official update of the status of our bill, H.244. The event was filmed by Channel 17.

Radio Interview with Rik Carlson on The Mark Johnson Show
Previewing the May 12th Press Conference, 05/11/05,

Audio File of this Event

Speech by Tonia Socinski-Barbin on May 12, 200

Federal Action Needed Now! Click Here

"Rep.Sanders ...is aware of and very sympathetic to the plight of those living with CFS. ...(and) is concerned and is supportive of the 11 recommendations to which you refer."

Michael T. Behan
Senior Policy Advisor
U.S. Representative Bernard Sanders

New Members Appointed to the CFSAC

February 10, 2006
From U.S. Senator Patrick Leahy: 

Thank you for contacting me about Chronic Fatigue Syndrome (CFS).
I appreciate hearing of your concerns on this issue.
CFS is a devastating disease that impacts thousands of Americans and their families. Our knowledge about CFS is limited and treatment options are often ineffective. I recognize that it is a serious public health concern and deserves greater attention and commitment. The Chronic Fatigue Syndrome Advisory Committee (CFSAC) was chartered in 2002 to advise the Department of Health and Human Services (HHS) on the policies and programs that impact individuals with CFS. In August of 2004, the CFSAC submitted their list of recommendations to the HHS. The recommendations highlighted the need to expand research funding and scope, particularly in the areas of diagnosing and treating CFS in children and adolescents. It is important that the HHS give their immediate attention to reviewing these recommendations and developing strategies to foster expanded research and more effective treatment. I appreciate you sharing your experience with me,! and you can be sure that I will carefully monitor this issue.
 Thank you again for writing. Please keep in touch.

 Patrick Leahy

The Vermont CFIDS Association, Inc.

Back to the Top

Education is the key to recovery.
You alone are responsible for the restoration of your health.
The Wisconsin CFS Association recently hosted an International Medical Conference on Chronic Fatigue Syndrome, Fibromyalgia, and other related illnesses.You can get all the books and materials from the conference at their site, linked below.They have all the speakers on video, CD, and DVD
This is an extraordinary organization and they can help you.
Go make some friends.
Wisconsin CFS Association

Lainey Rappaport Wins Burlington Leadership Award

Dr. Friedman Recognized !

They Laugh at Us.
This appeared in the
Wisconsin State Journal:

Courtesy of Pat Fero

Researchers at The University of Illinois at Chicago
& Tufts University
are interested in you.

On the Arrival of Illness
by John O'Donohue

Submitted by Cecelia Blair

Lisa Stevens & Cathie Dinsmore
U.S. National Snow Sculpting
Click Here

CFIDS as a Disability"
Arthur P. Anderson, Esq.
as prepared for
Vermont's Consensus Manual
Download as a .pdf file

Anderson & Buran PC
P.O.Box 1624
Burlington, VT 05402

Suffering from and living with
physical and emotional pain? come join this
Women’s Support Group
starting in March
12:00 - 1:30
323 Pearl Street #103
Kira Krier LICSW

Pediatric Pennies
A collaborative education and research project sponsored by PANDORA (Coral Gables, FL) and (Madison, WI)
Click on the coffee can
to print your own label.
Support our friends!

Never underestimate
the healing power
of friends.
(photo by Carl Cornell)

Able Disability Advoocates
Specializing in Social Security Claims Nationwide
Michael Milne

Toll Free
1-888- 774 3577

Special Thanks:
Heidi Brousseau Accounting

Nancy DeTarnowsky @
Dinse, Knapp, & McAndrew